Improving Social Connection for Young Dementia Caregivers

Observational Study

Get in touch about this study

What is the study about?

Young dementia caregivers are people under the age of 25 who provide care to someone living with dementia. Young caregivers are often called a “hidden population” because they are difficult to identify, and their needs are often unrecognized. Dementia caregivers face many challenges, like busy schedules, emotional and mental burdens, competing priorities, not enough time for a social life, loneliness, and many more.


Our research team aims to learn more about the social connection of young caregivers of people living with dementia (YCPLWD) in Ontario and improve it. Social connection is defined as “how people connect to each other, and it is made up of multiple distinct aspects”. In this first phase of our project, we will conduct focus groups with YCPLWD to learn more about their social connection.


Eligibility- Who can participate?

Participants must:

  • Be 18-30 years of age
  • Fluent in English
  • Currently living in Ontario
  • Currently providing care or have provided care* in the past 3 years to someone living with dementia
    * Providing care includes- but is not limited to- dressing/grooming, administering medications, providing practical & financial care, and/or emotional support


Time requirement

Participants will be asked to attend and contribute to a 1.5-2-hour focus group discussion. Here individuals will be asked about their social experiences as young dementia caregivers. Focus groups will be offered either in-person at the University of Toronto or online.  Participants will receive an appreciation of $20 to thank them for their time.


TDRA study investigator

Dr. Richard Foty, Dr. Edyta Marcon

TDRA Site:

University of Toronto

Age Group:

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Target Population:

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The listing of a study on the Toronto Dementia Network (TDN) is for informational purposes only. The safety, efficacy or scientific validity of the studies listed here have not been evaluated by The Alzheimer Society of Toronto (AST) or the Toronto Dementia Research Alliance (TDRA). The TDRA is an academic coalition among the University of Toronto and four memory clinics across Toronto at Baycrest, the Centre for Addiction and Mental Health, Sunnybrook Health Sciences Centre, and the University Health Network. The information collected will be kept and guarded by TDRA. Choosing to participate in a study is an important personal decision. Before you participate in a study, you should make sure you understand the risks and potential benefits and discuss all options with your health care provider(s).