A Pilot Study Assessing the Benefits of a Dementia Caregiver Educational Brochure on Decreased Empathy and Emotion Recognition in Patients with Neurodegenerative Disease

Observational Study

Get in touch about this study

What is the study about?

This study evaluates an educational brochure tailored to caregivers of people with Alzheimer’s disease, Parkinson’s disease dementia, Lewy body disease, frontotemporal dementia, and vascular disease dementia. The goal of the brochure is educating caregivers about the decreased ability to detect emotion and decreased empathy that can be seen in dementia, increasing caregiver competence in providing care, and teaching caregivers ways to manage over time that lessens burden and improves quality of life.

 

Eligibility–Who can participate?

  • The patient must be aged 50 to 95, speak English, and have a diagnosis of one of the following:
    • Alzheimer’s disease
    • Parkinson’s disease/dementia with Lewy body
    • Frontotemporal lobar degeneration-syndromes
    • Vascular dementia
  • The caregiver must be aged 30 to 95 and speak English

Time requirement:

The 1.5-hour initial visit will involve the caregiver completing questionnaires, structured interviews, and a computer task, and the person with dementia completing a computer task. A 20-30 minute follow-up phone call with the caregiver one month after the initial visit will involve completing questionnaires.

TDRA investigator

Dr. Carmela Tartaglia

More information

TDRA Site:

University Health Network (UHN)-Toronto Western Hospital

Address: 399 Bathurst Street, Toronto ON M5T 2S8

Age Group:

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Target Population:

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Do you have questions about research studies you saw on this page? Please contact tdra@utoronto.ca

Disclaimer

The listing of a study on the Toronto Dementia Network (TDN) is for informational purposes only. The safety, efficacy or scientific validity of the studies listed here have not been evaluated by The Alzheimer Society of Toronto (AST) or the Toronto Dementia Research Alliance (TDRA). The TDRA is an academic coalition among the University of Toronto and four memory clinics across Toronto at Baycrest, the Centre for Addiction and Mental Health, Sunnybrook Health Sciences Centre, and the University Health Network. The information collected will be kept and guarded by TDRA. Choosing to participate in a study is an important personal decision. Before you participate in a study, you should make sure you understand the risks and potential benefits and discuss all options with your health care provider(s).